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12/23/2004

A supposedly fun thing I'll never do again

My future fertility was decided by committee two days after Charlie was born, by people I didn't know.

On Monday morning, when I was finally allowed out of bed, I combed my unwashed hair, put on the single pair of filthy socks I possessed, and made sure my ass wasn't showing through the peekaboo slits in my hospital gown. Then I shuffled slowly down to the NICU to see Charlie, anxiously shadowed by my mother, who stood at the ready to break my fall if I decided that the 100-yard walk was too far.

You know, it almost was. When we walked in, the nurses surrounded me in a protective swarm and ushered me to a chair. "We're just doing rounds," one of them said. "We're about to talk about Charlie." I sat hunched uncomfortably over my incision and listened.

The doctor who was speaking looks sort of like an elf — the cartoon Keebler kind, not the ethereal Lord of the Rings kind. He's short and pink, baby-faced with silvery hair, and I'd find him reasonably pleasant if he were offering me cookies baked to a golden brown inside the cozy recesses of a hollow tree. But, no, he is instead a somber elf of doom: just the morning before he'd sat in my hospital room saying gloomy things like, "Well, we don't have a crystal ball..."

Now he was going over Charlie's case, using a lot of acronyms I didn't understand at the time, summarizing for the benefit of two physicians' assistants, three nurses, two other doctors, and a gorgeous young medical student. He conducted rounds like a fey tiny Socrates, starting sentences but demanding that others finish them. He covered the urgency of Charlie's birth by holding his ball-point pen aloft — "And he had to come out right away because Mom's platelets were...?" — and dropping it onto the floor with a noisy clatter, then turning expectantly to the student. She pursed her pretty mouth like a guppy, her lips making impotent nibbling motions, unable to come up with the right words.

Don't let her touch my baby, I prayed.  I know full well what guppies do to their young.

The doctor sketched out my medical history in some detail. Four IVFs, two prior losses, complete placenta previa, gestational diabetes, HELLP syndrome. He looked expectantly at the group as he finished: "And would it be a good idea for Mom to get pregnant again?"

I looked, too. And seven heads shook solemnly side to side. (The student was too busy gumming her tasty, tasty plankton to offer an opinion.)

I had already come to that conclusion myself, during my bouts of teary wakefulness the night Charlie was born. It had all been terribly hard. So hard to get pregnant, so hard to stay pregnant, so hard to face what lay ahead with Charlie in the NICU. And not only hard, but dangerous. And not worth the future risk.

  • Gestational diabetes. This is a complication a lot of women experience, and for most of them and their babies it's little more than an inconvenience. But it left Charlie's lungs unusually immature, making his first few weeks painful and frightening for him and for us and perhaps leaving him especially vulnerable in the future to respiratory problems. The recurrence rate of gestational diabetes is around 65%.
  • Placenta previa. Placenta previa isn't a common condition to begin with (.3-.5% of all pregnancies). It's even more unusual for it to be complete and to persist to term. It is not especially likely to recur (4-8%), but the risk increases with increasing age (check), parity (check), and previous C-section (check). If it were to recur, I would be looking at a 50-60% risk of pre-term delivery. And a pre-term delivery coupled with gestational diabetes puts us where we are now — or, more troubling, where we were almost a month ago.
  • HELLP syndrome/preeclampsia. Studies vary on how likely HELLP syndrome — which I had, which is more immediately dangerous than garden-variety preeclampsia — is to recur. Estimates range from around 5% to 27%. There is agreement, however, that women who've had HELLP are at increased risk (40-50%) for complications in future pregnancies, including preeclampsia, pre-term delivery, IUGR, placental disorders, and perinatal death. Even without HELLP, though, in my case the recurrence rate of plain old preeclampsia is about 40%. (It would be about 60% if I'd developed preeclampsia before 28 weeks. The earlier in pregnancy it occurs, the greater the chance it'll happen again.) And a frequent necessity in cases of severe preeclampsia? (Imagine the med student chewing kelp, and an incredulous silence descending as we wait in vain for her to answer.) Preterm delivery.

Now don't get me wrong. I am not sorry; I don't regret anything that's happened because it's brought us Charlie. After the fact, he is worth what we've endured. And I'd believe that of any other child Paul and I managed to conceive. But "Has it all been worth it?" is a very different question from "Knowing the risks, could I jeopardize my own health and the health of a baby I'd have come to love by the time it was endangered?"

I realize that I'm not likely to pull off a hat trick again, with so many hair-raising complications jam-packed into one measly pregnancy. I know I'm not likely to have any of the above again except for diabetes. But I also know I wasn't likely to get them to begin with. And that there are a thousand other complications I haven't even Googled. And that I could only get pregnant through expensive, heroic effort. Could it possibly be worth the risk?

I am making gaping fish faces, chewing on the only answer that makes sense to me.

Posted by Julie at 10:22 PM in The doctor is IN, Welcome to the bad place. Population: You | Permalink

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Comments (72)

I'm so sorry. But so impressed with your strength. My MIL almost died after my husband was born, and she was told not to get pregnant again. She had two more kids (almost dying after each of the other two). I have never understood why it was more important to her to have more biological children than it was to make sure she didn't leave her sweet son without a mother. Charlie will never doubt your love for him.

Posted by: Moxie at Dec 23, 2004 10:36:12 PM

As another person who really shouldn't have any more children, don't rule it out completely based upon their comments. I had many difficulties getting pregnant (not as many as you) and my youngest child has a birth defect (spina bifida). I originally said "no more". Too dangerous, too many things to go wrong. I'd love to have another one and wouldn't let the "unknowns" keep me from seeking to put the risks (and the things that can reduce the risks) into the right perspective. Don't rule it out until you speak w/ your R.E. or a high-risk OB. If you want more children and are able to have them, you can't overlook the fact that you have a beautiful miracle. Miracles don't happen every day...but perhaps another blessing is waiting for you.

Posted by: Michelle at Dec 23, 2004 10:46:59 PM

How weird for them to be discussing this in front of you! I was just waiting for your lawyer to stand up and yell "Objection, your Honor."

Chewing on thoughts is a good thing. It will give you some time to prepare good comeback lines for when everyone starts throwing their great ideas your way.

All the best to you and Charlie! You guys are great.

Posted by: juliejulie at Dec 23, 2004 10:58:18 PM

It's an intensely personal decision, and I'm sorry that you had to witness that decision being made for you while hunkered over your incision. Sometimes teaching hospitals suck. I'm sure you and Paul will make the decision that is best for all of you, if and when the time comes to make that decision.

Posted by: Sandy at Dec 23, 2004 10:58:34 PM

It must have been pretty demoralizing to hear about your future fertility at that particular point (though shortly after my c-section, once I got the Percos going, I was pretty immune to most emotionally-charged stimuli).

I continue to think of and pray for your family. I wouldn't worry about fish-face, either. For a baby with as many challenges coming into this world as Charlie has had to face, to get a 9/9 APGAR (sorry, I'm STILL marveling at that), I have no doubt that you'll eventually see Charlie enjoying fish face with tartar sauce and a side of chips.

Posted by: Susy at Dec 23, 2004 11:01:05 PM

Just the thing you needed to hear. I'm sorry that you had to listen to them. I know it was ivf# 4, but it was Cornell ivf#1. The GD, well I hated the GD, so I won't even go there. Finally, What are the chances of another embryo parking its placenta over your cervix? They just had a cursory view of the facts. In time you'll come to your own decision. Drs. are such assholes.

By the way, where did your hospital underwear come from? Victoria Secrets?


Posted by: elizabeth at Dec 23, 2004 11:09:38 PM

Proximity in time gives one perspective. Distance gives one perspective as well. It is good that you've committed your thoughts at this more proximate time. But don't let a keebler elf teacher/doctor and his minions rule anything out without distance and a greater expertise to counsel you & Paul. Once you have more, or perhaps the same exact information, you can reflect on these words today and see if they match up or are different. Nothing needs to be decided right now, it only needs to be written down for honest reflection later.

Posted by: Boulder at Dec 23, 2004 11:11:30 PM

Julie
Do what is best for you, your son and your family. Do the decision your heart and head tell you is best, whether its this one, or another down the road.
I have babies through adoption and birth,all are great children.
So whether you decide to have no more children, adopt children or try again- let it be your decision.

Posted by: Lisa at Dec 23, 2004 11:43:26 PM

I have to say it's crazy what happened to you, ever bad odd you grabbed it. It truely is a miracle that Charlie is here, could you pull the rabbit out of the hat again (or kill it as the case may be?) I don't know.

I do know that it's your choice and your life, and whatever you decide. As measly as my opinion is, I am behind you (sometimes it feels to me no one is behind my decisions thats why)

Posted by: Magnolia at Dec 23, 2004 11:52:09 PM

That had to suck hearing it like that. I am thinking of you, Paul and Charlie.

Posted by: beaver girl at Dec 24, 2004 12:15:30 AM

Take time to heal and love your family. Some things you can think about later.

I hope you have a non-eventful stress-free Christmas with Charlie.

Posted by: LisaN at Dec 24, 2004 12:21:01 AM

All I can say is this: I am so glad you're alive. I'm so glad Charlie is alive. And I love you. And, I'm sending you fresh underpants. You think I'm kidding? Watch your mail, baby.

Posted by: Danae at Dec 24, 2004 12:21:15 AM

Hard to believe they would bring that up so soon after Charlie's birth and under those circumstances. It certainly would be worth your time to talk to an OB or RE.

On the other hand, from someone who beat the odds and has a dd, at this point, I am afraid of leaving her and would think really hard about trying again. You are much younger than I however.

Give yourself some time, answers will become more clear and go eat some Christmas cookies.

Posted by: KimMN at Dec 24, 2004 12:24:34 AM

it does seem awfully hard to have heard such a discussion. Sending every best holiday wish to you and Paul and the miracle that is Charlie.

Posted by: terri c at Dec 24, 2004 12:24:41 AM

I too am surprised they decided that so 'kindly' in front of you.

My mom was told she would have TWO babies, both via c-section due to her 'incompetant cervix' (nice term guys..) She went on to have SIX children vaginally. I don't think anyone can decide your future but your husband and yourself. If you decide having Charlie was risky enough for all involved then so be it. But please do not let a bunch of interns decide your fate for you.

Whatever happens you have lovely Charlie :) The birth of my son was such a mind blowing event, he made me 'Mom'. And that was such a wonderful thing :)

Posted by: amy at Dec 24, 2004 12:37:01 AM

The way I see it, you don't have to decide a darn thing right now. Have a wonderful holiday with your adorable son and dear husband.

Posted by: ValleyGal at Dec 24, 2004 12:43:47 AM

OK, let me get this straight-this doc knew you were there, right? Sorry, totally inappropriate. Nope, wrong, uh-uh. I don't care what cute little woodland creature he looked like!
I had IF problems (nothing like yours, but still), pre term labor w/bedrest for 6 weeks, Kate was born 4 weeks early, and I ended up w/post partum depression bad enought to get me admitted to the psych unit (of the hospital where I now work-how ironic!) for 8 days, and for which (6 and 1/2 years later) I'm still on meds. If I tried to get pg again it would be IVF, w/bedrest for the entire pregnancy, and then all kinds of adjustments of my psych meds. Interestingly enough, my husband and I had pretty much decided before we even started trying to get pregnant that we probably only wanted one. So for me it was pretty much a no-brainer. But it's so individual.
Seems to me like it's kind of soon for them to even bring it up. Just concentrate on getting Charlie home. All those issues will still be there in the months to come-there's time. Hope all's going OK. Tell Charlie that for my Christmas present I'd like him to breath, please!

Posted by: Abby at Dec 24, 2004 12:46:35 AM

Julie, I am in a very similar situation as you are. My daughter Emma was born six weeks early because of HELLP syndrome. In addition to my c-section, I needed two surgeries to stop my liver from bleeding. I have seen those exact studies you cite, and I was also told shortly after Emma was born not to have any more children. It's something that I live with every day, and I wouldn't be honest if I said that every other day I think, "Now, we could have another baby. We know the risks now. It wouldn't happen again. We're not letting some stupid doctor (and studies and a wealth of medical evidence) make our decision!"

But do you know what stops me from TTC again? It's not what the doctors say. There's no way I could put my husband and daughter through nine months of worry. Shortly after Emma's birth, my husband was told that she had a 50-50 chance of survival, and that recovery of any kind for me was unlikely. Emma's NICU records have a line that "mother is in ICU with poor prognosis." Well, 2.5 years later, I have only the scars left (and what a beauty they are --- I had about 70 stitches/staples from my sternum on down).

How could I put myself and my family in jeopardy again? It would be a very, very selfish choice for me, and not the best choice for MY family. At the very least, I would be depriving my husband of a wife and my daughter of a mother while on bedrest, which I probably would be on for most of the pregnancy. At worst, I would be depriving my family of a wife and daughter for good. Sorry to get melodramatic here, but that's the scary reality of HELLP syndrome survivors.

Posted by: Mel G-F at Dec 24, 2004 12:48:30 AM

OMG, I can't believe he did that! We had a neonatologist that made me so mad I called him Dr Gloom and Doom to his face one day. As a nurse I understood why he did it, I just don't agree he had to do it. I strongly suspect that your doc there said that because he KNEW you were there.

As a pre-e/HELLP survivor myself, don't make an immediate decision if you don't have to. I had severe pre-e with our daughter. She was stillborn, and I almost died with her. My doc never once said not to do it again. He simply said lets do it more carefully. I had even more problems with my twin pregnancy. You know what? My doc expected everyone of them. Would I do it again? Not in a million years. But it took over 2 years for me to finalize that decision.

He had no business saying that in front of you. He's lucky it wasn't me he said it in front of. I'd have ripped him a new one. Of course, I spent time chasing old gloom and doom around a desk because he wouldn't tell me what the lab values were for something. lol I'm just a bitch that way.

I'm sorry you had to exerience that. I could probably tell you what the idiot was thinking, but that was really unprofessional. As if you weren't experiencing enough guilt already.

Posted by: Amy V at Dec 24, 2004 1:15:25 AM

I questioned the dr saying that gibberish and wondered why you seemed alright with it. It seems like you have a bit of peace with the idea. I think that is probably a relief to you.

When I had my son, he was early (and I'm whining here) and I really hated labor. Going into it, I said I'd like another child right away. During it, I said almost as a mantra, "He's an only child. He's an only child."

The winds changed when he was 9 or so months old. I desperately wanted a sibling for him. That's what changed me more than anything. Now, I'm still searching for that sibling and I am fairly certain that GD will happen. I didn't go through anything like you and I respect your current decision, but I hope you keep an open mind b/c it may change.

Posted by: Cricket at Dec 24, 2004 1:38:44 AM

I CANNOT believe they discussed this SO soon after all you had been through. F-ING perverse in my humble (cough) opinion! When the time comes, regardless of your decision, have your comebacks...we all have faith/know you will. (please, if necessary, "give food for thought." You just focus on that precious baby...even before everything happened, I was convinced this kid would be a super-hero and he's already proven more than that.

Posted by: Jaine at Dec 24, 2004 1:47:17 AM

It's never easy to make an unbiased decision while in the middle of things. Your current situation is too raw for you to project it onto possible future events. The human mind, being the awfully sadistic thing it is, will probably continue to feed you "what ifs"... just counter it with "look what did." (That's the good what dids, mind you!!) Hope things calm down for you three, if anyone deserves special treatment this holiday it's you!! *Warm Fuzzie Thoughts* for the holidays and beyond.

Posted by: EmmaS at Dec 24, 2004 1:51:36 AM

I'm with Danae (not the sending-you-underwear part, the glad-you-and-Charlie-are-alive part).

As I got to the end of your post, I shuddered a bit, knowing what was going to come in the comments. Heroic stories of gals who ignored the docs and beat the odds, had five more babies when they were told to cross their legs and never open them again.

Well, I get a bit grouchy when I see that bullshit (and, well, to me, it's bullshit. I'm editorializing here), but what the hell, you opened yourself up to it.

All I know is that the world would be a lot less cozy for me without you in it. I wish with all my heart that for you, pregnancy and childbirth, even if hard-won, had been a happy and healthy experience. But since it ended up being life-threatening for both you and the kid, I'm very much with the docs on this one. And if I were the doc, I probably wouldn't have wasted much time making sure you got the facts, either, since I'd be in the business of helping people avoid untimely death, and who knows how many chances I'd get to speak my piece before you were discharged?

And there's my bullshit, rife with evidence of my own neuroses. But hell, you allow comments, right?

Posted by: mollie at Dec 24, 2004 2:20:30 AM

Please bear in mind that his was a teaching situation, ostensibly for some pretty thick students, so the midget doctor would have been running through the worst case scenario for teaching purposes. This is a decision that only you and your husband can make.

It would have been wise for a nurse to take charge of you in your fragile state, and usher you out. I don't think that teaching ward rounds are ever pleasant for the "victims".

Posted by: e at Dec 24, 2004 4:25:38 AM

Julie, like others wrote I am happy you and Charlie are safe and here with us. I agree with others that the docs should have discussed your case in a more sensitive way. Ultimately, you and your DH will do what you think is right.

To a speedy home coming for sweet Charlie.

LauraN

Posted by: LauraN at Dec 24, 2004 4:48:43 AM

I'm reminded (sadly, I know) of Steel Magnolias, when Julia Roberts character Shelby is told not to have children - and then does. She says something about the following "It's like leaving a little piece of immortality that has Jackson's looks and my sense of style."

Just something to think about (and the fact that I've watched that damn movie WAY too many times to be quoting it).

Posted by: Toni at Dec 24, 2004 6:28:35 AM

Now I know why the NICU staff hid around a corner and spoke in whispers when I happened to be there for rounds. I'm so sorry you had to hear that.

I am glad that you are thinking clearly about the whole thing, but I'm also glad you won't have time to dwell on it when Charlie gets home!

Let it be soon!

Posted by: Bella at Dec 24, 2004 7:14:00 AM

No great and/or horror stories here. Just sincere wishes that you get to take Charlie and yourselves home soon.
Once the hormones subside a bit, let heart and brain decide what's best. Ultimately, you and your husband will do the right thing for the right reasons. Regardless of what you decide, Charlie will be there, always.

The best of the season to you all and a joyous, peaceful (hah) and restful (double hah) New Year. The three of you are in my thoughts.

Posted by: Kinneret at Dec 24, 2004 8:55:38 AM

Everyone's made such good points. Of course, in the end, only you and Paul know what's best for your family.

I've had to face the same decision. After considering what trying for another baby would do to me and our family (the ttc nightmare, then GD, ante-natal depression, PPD, PPOCD, and something that went wrong with my placenta after delivery that I don't have a name for but involved WAY too much blood) we decided to leave things as they are. It wasn't an easy decision to make; I tend to feel wistful and sad whenever I think about it. However. While I regret the necessity for the decision, I don't regret the decision. It's the right thing for us under the circumstances.

You have my sympathy. I hope things pick up for you very quickly.

Posted by: Jensgalore at Dec 24, 2004 9:04:35 AM

e wrote:

This is a decision that only you and your husband can make.

Indeed, and a decision that was already made when I walked into the unit:

I had already come to that conclusion myself, during my bouts of teary wakefulness the night Charlie was born.

At the moment, I feel like Mel G-F does: now that there's a real live kid involved, I can't even consider taking those chances.

And if I'm honest, I'll say it's something of a relief.

Posted by: Julie at Dec 24, 2004 9:11:03 AM

I know what you mean. I'm 12 wks right now, and if the absurd notion that this baby will be born becomes reality, no more for me thanks. Too hard, too sick, too long. It's not even a high risk pg. But I've had two prior losses also, and even that's enough reason to not do it again.

Besides, you can always "Just Adopt" (tm). ;)

Posted by: Lily at Dec 24, 2004 9:38:28 AM

Wow. I'm a pediatrician and have been the student and the resident on those NICU rounds. And at my hospital, the future reproduction of the mother was never discussed. Not because it was inappropriate adn a decision was made to not discuss it, but because it has no relevance on the case of the baby and because - let's face it - it's so completely outside the realm of expertise of a neonatologist. I'm just flabbergasted that this discussion took place.

And also pretty amazed that they did rounds right in front of you. I can't remember ever having rounds in front of parents. Sometimes there's just stuff that has to be said that will of course have to be said to the parents, but in a totally different tone - a caring, supportive tone instead of the clinical, abbreviations everywhere, cold tone of rounds.

Wow. Just surprised. I guess things are done differently everywhere.

But, good luck with the healing process and may Charlie continue to do well. Are they doing a complete course of the antibiotics even if nothing grows? Sounded like a scary day - brought back all my horrible memories of time in the NICU and they weren't even my children. Still shudder to think of those months.

I hope your holidays have some great high points to remember over the rest of your lives.

Christine

Posted by: Christine Konfrst at Dec 24, 2004 9:52:46 AM

On behalf of NICU staff everywhere, I apologize for the elf's insensitivity. Yes, it was a teaching situation, but you were standing right there for chrissakes.

Even if you hadn't already come to your own conclusions, which you have, a NICU attending doesn't have much say in the matter. That'd be up to you, and Paul, and your RE, and your OB, and you.

Posted by: KathyH at Dec 24, 2004 10:02:17 AM

Julie, you already know what I think. It sounds like you and Paul have made a carefully-considered decision with your family's best interests at heart. Thank you for sharing your decision with us here.

Posted by: getupgrrl at Dec 24, 2004 10:03:25 AM

I'm in a similar boat. My kidney disease made itself known while I was pregnant, so I did the whole high-risk pregnancy thing with weekly prenatal visits. And then had an emergency C-section at 31 weeks. The maternal-fetal medicine doc said, "We've helped women have babies after kidney transplants, so come back after a transplant if you want." Unspoken message: But don't get pregnant with the kidneys you have. It took 4 years before any doctor (my nephrologist) mentioned the possibility of another pregnancy, and he advised me that it would speed the demise of my kidneys and necessitate a transplant far sooner than otherwise.

Personally, I would love to have another baby--but only if I could have a healthy pregnancy (who knows if I'd even be able to get pregnant) and not screw up my health, be on bed rest for months, and have an even tinier preemie. I feel my responsibility is to the kid I already have, being a healthy mom for him. (That's just me. Other women have preemie after preemie and seem to thrive somehow.) And I don't want to relive the worst times of ICU, NICU, and pumping.

But your situation is different from mine, as you didn't leave pregnancy with a chronic condition made worse by pregnancy. If you kind of would like to try for another child, I would encourage you to meet with a good maternal/fetal medicine specialist (perinatologist) when you're ready, to discuss what your odds are and what they could do to try to improve your outcome. Or skip it and just make sure you don't get pregnant by mistake (ha!). I like the Mirena IUD, personally. (Supplemented with a lot of abstinence. Very effective!)

Someday, we may end up adopting another child or taking in foster children. And if we don't, we'll know that we're able to provide everything possible for Ben (well, except a sibling). Things like college savings are much more affordable when you have only one kid, after all. And we haven't had to buy a bigger home, which would use up so much more money. So there are practical advantages to having an only child.

Your scabs will be picked at especially often when Charlie's a toddler, and strangers and mere acquaintances will ask if you're planning another baby soon. They assume that it is a truth universally acknowledged that a woman in possession of a toddler wants another baby and can have one at will. (These are the same people who will be inquiring about your breast-feeding habits in the coming months. Grr, I wanted to slap them all.)

Have a merry "baby's first Christmas"! Thank you for sharing your story with us. Perhaps Charlie will inherit your gift for writing, and we can read his "I Was a Preemie Werewolf" blog someday...

Posted by: Amy at Dec 24, 2004 11:33:19 AM

Julie honey you've been through hell. I understand your feeling of relief.

Sending best wishes to you and your darling family.

Posted by: lorrie at Dec 24, 2004 11:55:11 AM

Sigh. Those inconsiderate physicians........just hoping Charlie is doing well after his recent scare and that the antibiotics are kicking some "bugs" ass!

Posted by: Laura at Dec 24, 2004 12:08:08 PM

This is odd-- having a parent listening during rounds. Each of the hospitals we've been in they always, *always* had the parents leave during rounds (much to the parents chagrin I might add.)

All I can say is when your in the eye of the hurricane, it's hard to get perspective.

Wishing your family and healing New Year.

Posted by: Marla at Dec 24, 2004 12:41:14 PM

Yes, I was surprised they didn't throw us out during rounds, too. There weren't any other babies in the NICU at the time, so patient confidentiality wasn't an issue, and, after all, I'd walked all that way down the hall, so I assume they were reluctant to turn me away.

Posted by: Julie at Dec 24, 2004 1:40:53 PM

It's still your choice.

Sending you good wishes and a very merry first christmas for Charlie.

Posted by: AyEnDeeAreEeAyAitch at Dec 24, 2004 2:02:51 PM

As a med student who hasn't been anywhere near in your shoes, my first thought was "Patients routinely do things that their doctors might not consider a "good idea""
but I can respect how difficult it must have been for you to hear that from a panel of strangers, especially considering the intensity with which you have persued your dream of bearing little Charlie.
(On a side note, I'm going to support the theory that this statement was done for the benefit of the students present.)
I love reading your blog, because your story is incredible, you're a great writer, and often (for instance, in this post) you remind me of the many ways that doctors can influence their patients' lives, sometimes without even directly interacting with them. I can assure you it will make me a more sensitive doctor. So thank you again for sharing your story. If (future) docs don't know, they can't learn.
Ever learning,
Sara

Posted by: SargonZ at Dec 24, 2004 2:29:44 PM

I'm afraid I would have to stop that doctor later and ask him if it was difficult being both a neonatalogist AND a perinatologist. "Is your schedule just hell? Oh wait, you're just a neonatalogist? (Grabbong one of the NICU chairs)THEN SUCK ON THIS, TINY MAN!!!"
Sorry, I get carried away...
But really, before you make heart-wrenching decisions in an extremely intense situation, talk to your doctor. Talk to a perinatologist. Give yourself time. Charlie could turn out to be more than a handful, and by the time he's two, you may shudder in fear of another child:)

Posted by: Mia C. at Dec 24, 2004 3:24:10 PM

We don't toss parents out of the room for rounds either. In fact, some parents make it a point to be there for rounds. FWIW.

Posted by: KathyH at Dec 24, 2004 3:50:56 PM

Dear Julie, Paul and little Charlie ~
Charlie, babe, welcome to the world!! Julie and Paul, I am so sorry you are having to go through all of this. I cannot add much more than that you have my whole-hearted support and every prayer. I hadn't been keeping up (personal reasons) and checked back in the other day only to discover that Charlie had entered the world - oh, the events I missed!! Tears of fear AND joy. Today though I thought of this to share with you - my own Grandmother was born in Indiana on a farm in 1916, prematurely, about the same as Charlie, 7 months. They kept her in a warm oven and fed her goat's milk and brandy and twice did not think she would live. She lives now in Tennessee, healthy, happy, active and well, having lived a strong life and outliving every one of her family members. "God has some purpose for me" she says.

I share this with you because I know how complex and scary medicine can get - from my own incomplete brushes with IF and pregnancy - often it seems we know too much and not enough all at the same time. Many blessings to you all and may you all go home very, very soon.
Linda

Posted by: Linda at Dec 24, 2004 5:25:59 PM

You an Charlie are ment to be here on this planet.

When you make you decision as to whether or not you should have another child, make no excuses when people give you their opinion. When people ask me and my husband why we didn't have more children (we have two and would have liked one more at least) we answer with "We are lucky that we got the two we have and that we got to even keep the second one." What we went through was nothing like you and your family is going through.

Hang tuff little Momma.

Posted by: Rebecca at Dec 24, 2004 8:41:52 PM

I realize you're very busy now, but seems to me that it might benefit the hospital and future patients therein if you wrote a pointed letter discussing the fine points of bedside manner during rounds.

Anyway. Having said that, I wish you and Paul and Charlie a very happy, healthy, and peaceful first Christmas together.

Posted by: Rhonda at Dec 24, 2004 8:53:19 PM

Besides their obvious lack of tact and compassion, your crack medical team wasn't thinking very creatively. Have they never heard of gestational surrogacy, for example? Not that it's as easy as snapping your fingers, but people have successfully done it. Whatever. I'd much rather see you breed again than any of them. But one is good too.

Posted by: Carol at Dec 24, 2004 8:56:13 PM

And if I'm honest, I'll say it's something of a relief.

The big decisions generally are.

Bless you all. I wish you a quiet New Year.

Posted by: Jonquil at Dec 24, 2004 9:07:12 PM

I agree with Boulder darling Julie. Don't make that decision now (I know, rich coming from me!). Wait a while and see how you feel. It sucks though. After all that you have been through it is not flipping fair, at all.

Posted by: Tertia at Dec 24, 2004 11:17:56 PM

Julie, you weren't supposed to hear that stuff. Any senior Dr would expect his students to concur with him, they HAVE to! Any brand new mom with her girl bits newly ripped and stitched back together would concur, too! In a while, sensible advice will prevail and that will be when a fat and healthy Charlie begs you for a baby bwuvver! You know what? Decide then not now. Just get through this part of your life's journey.

Posted by: Tia at Dec 25, 2004 1:57:01 AM

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